#MyHCandME
YOUR HYDROCEPHALUS, AS INDIVIDUAL AS YOU ARE
HOW TO CREATE YOUR OWN campaign photo
Step #1
Show us who you are!
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- Upload a photo of yourself that fits to your story.
- YYou can customize the image section in the tool.
Step #2
Choose your personal statement.
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- Choose the statement that's right for you. It will appear on your #MyHCandME photo.
If you like, you can add a short message, which will appear together with your photo in the gallery.
Stept #3
Share your photo.
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- After your approval, we will publish your campaign photo in our gallery.
- You will receive your personal photo by mail, so you can share it on your social channels.
Photo generator
![[Translate to English:]](https://www.miethke.com/fileadmin/_processed_/d/b/csm_Claudia2_6d4180638e.png "[Translate to English:]")
![[Translate to English:]](https://www.miethke.com/fileadmin/_processed_/1/2/csm_MIETHKE_LebenMitHydrocephalus_Story_Slider_wide01_cb8f5abc70.jpg "[Translate to English:]")
![[Translate to English:]](https://www.miethke.com/fileadmin/_processed_/1/d/csm_Miethke_Mary_Storry_020cc0fe1d.png "[Translate to English:]")
![[Translate to English:]](https://www.miethke.com/fileadmin/_processed_/4/3/csm_MIETHKE_Ivo_Storry_b0a27688f1.png "[Translate to English:]")
![[Translate to English:]](https://www.miethke.com/fileadmin/_processed_/6/2/csm_MIETHKE_Rahel_Storry_551e76c71f.png "[Translate to English:]")
![[Translate to English:]](https://www.miethke.com/fileadmin/_processed_/d/6/csm_Miethke_Ole_Storry_b5058d03ba.png "[Translate to English:]")
"After more than 20 years with the wrong valve, I got the first Miethke in 2016 and thus my life back; THANK YOU Christoph Miethke Team, but the best valves don't help without good neurosurgeons, I still lack them, that brought me resources, and the bike (my dream) is in the corner, but I'm fighting..."
"Never give up, push the boundaries and keep going, keep going. Recognize what and who is good for you, the rest is not important and doesn't deserve any effort. I don't always want to be reduced to my deficits, if possible I just want to be allowed to be like everyone else."
"I was very lucky from day one. Great parents, great doctors and that was in 1969/70. Today, thanks to C. Miethke, everything is so much better and easier for those affected. I've never missed anything and I'm a happy husband today. It didn't take courage. Only the right environment. Thank you to Potsdam :-)"
"I just want to be accepted.... and NOT be ashamed of the fact that I have to live with hydrocephalus! This constant pressure to function "normally" is very difficult for me.... also because I have always had to put up with comparisons with my younger siblings, both of whom do NOT have HC."
""Believe in yourself, stay strong and never give up!" (◠‿◕)"
"Continue to follow your path and don't let anyone stop you. It has now taken me 5 years and 5 operations...."
"I am Jay, 30 years old & suffer from the disease iiH. I've been fitted with the Mblue + for a month now & the Mscio will be joining me soon. The road is hard & bumpy, but with the love of my life, Laura, I can manage any difficult path. You can fall down, but giving up is never an option! Much strength to all fellow fighters"
"My hydrocephalus was unrecognized for 18 years! When the disease became life-threatening and the pain unbearable, the cause was finally found, until then my life had been one big battle! I still struggle every day with the consequences of the late diagnosis, especially with often severe headaches and low resilience!"
"From one day to the next I was a care patient, I fell all the time, could hardly walk and certainly couldn't walk up any stairs, the diagnosis of hydrocephalus turned my life upside down from 0 to 100."
"I was diagnosed with Hydrocephalus as a young baby after being born with a very rare condition. It has made me a very positive, determined person because I know how short life can be - I'm currently learning to fly (with the Miethke shunt in my skull) and I love it! The message on the aeroplane reads "Still Running"."
"Cycling is my great passion!!!
With hydrocephalus every day is different, one day I'm in a good mood the next day I'm not fit to cycle! I have to listen to my body more! ""Ability to perform???""
"You should always listen to what your body is telling you is wrong. Even if you are young, you can get a chronic illness - it can affect anyone. But you are not alone."
"Since the shunt operation, life has made sense again and I can be involved in life again"
"Hello,
I have a very long story, so in general I can only advise everyone to keep going. There are situations where everything is exhausted and yet you keep going. I suffer from pseudotumor cerebri and have already had many shunt operations.
We are strong! You are great the way you are!"
"The main difference when i got my first shunt in my head is that I could re-open my eyes, it felt that my brain slowly started working a bit more and the hope that I had hidden came back on the surface.
Every time things go wrong you come back stronger and you just have to keep on fighting... believe and hope..."
"When you are torn from your previous life with one blow, you start to see things with different eyes."
"When I was diagnosed with hydrocephalus at the age of five, I already had the head circumference of an adult. I am very grateful that the two subsequent operations went so smoothly and that I can now live without restrictions. The only thing I can't do is borrow helmets or caps from friends ;)"
"Hydrocephalus is an invisible, complex and challenging disease. I have mine due to a brain tumor.
Since the implantation, I understand my body more, pay attention to the signs and want to advocate more for visibility of the disease! Instagram @kriitna"
"I can't do anything about the hydrocephalus. The only way is to accept it and live with it. But I was able to achieve so much even with hydrocephalus. Sometimes it goes downhill, and then I have to get new energy to get back up again."
"Living with hydrocephalus is possible even if it causes some problems. It is important to always have goals that you are working towards."
"I wouldn't have needed a hydrocephalus, but now I have it and I live with it."
"Like my spina bifida, my hydrocephalus has been part of my life since birth. The hydrocephalus hardly limits me at all. Only the wheelchair is an obstacle in many areas of my life. Nevertheless, I was able to graduate from school and complete an apprenticeship. Now I hope that I can find a job."
"For the longest time in my life, hydrocephalus was NOT a part of me. After the diagnosis in 2012, I had to come to terms with it. 20 operations later, I still find it difficult to accept hydrocephalus on some days. But thanks to the many great people who support me, I am never alone."
"I am proud of my body. It has come through a lot. My scars only show that I can live a healthy and grateful life."
"My hydrocephalus has taught me to keep fighting, to be strong and not to allow myself to be restricted. There is something positive in every situation. It just sometimes takes time to recognize this. I don't let hydrocephalus rule my life. I just need to take a little more care of myself."
"I love traveling around the world"
"No matter what, Hugo belongs to me, sometimes more, sometimes less. I don't let him dictate my life."
"Even with hydrocephalus, you can live a normal, fulfilling & happy life, even if minimal, individual adjustments are necessary. I have great people around me who make me forget my condition, but not forget how disruptive it can sometimes be. That is very important."
"Suddenly torn from life at the age of 17 with a diagnosis of hydrocephalus, many ups and downs but never gave up.
I feel good and appreciate life more than before ?"
"Having hydrocephalus doesn't automatically make you different.
I only found out that I had hydrocephalus when I was 12. Since then, I've tried to deal with it (even if I still find it difficult now). Over time, however, I've learned that you're still just like everyone else."
"I was told that I would remain weak and would not get far with school. The good Lord protected and supported me. I love my freedom and independence."
"I have spina bifida and hydrocephalus from birth. I was taught as a child: no ball sports, no swings, no merry-go-rounds. And then at some point when I got older, I found out that I can do a lot more with hydrocephalus than I thought.
I was a professional hand cyclist for 24 years and still do a lot of sport in the gym, go to physiotherapy and have been arm wrestling for three years."
"My hydrocephalus is my biggest challenge at the moment. But you can always grow from challenges!"
"I had my shunt when I was three months old. I'm here to encourage other people and to show other people: I am here and I will continue to be here and fight to live my life the way I want to live it."
"I would say that this disease, hydrocephalus, is simply not publicized enough because you don't see it straight away. It simply always has a negative connotation when you hear that you have a disease. But I think it depends on how you deal with the disease."
![[Translate to English:]](https://www.miethke.com/fileadmin/_processed_/d/6/csm_MIETHKE_Patienten_erzaehlen_Teaser_144c4b77d2.jpg "[Translate to English:]")
![[Translate to English:]](https://www.miethke.com/fileadmin/_processed_/d/b/csm_MIETHKE_myhcandme_Slider_36e844cb46.png "[Translate to English:]")
OUR PARTNERSHIP
WITH B. BRAUN
B. Braun and MIETHKE - Together for a better life with hydrocephalus
We have a long and intensive partnership with B. Braun in the field of neurosurgery. We are driven by a common vision: to improve the lives of hydrocephalus patients around the world with innovative solutions.
Our partnership is an exciting combination of B. Braun's nearly 180 years of expertise as one of the world's leading medical device and pharmaceutical companies and our agility as an innovative company and technology leader in gravitation-based shunt technology.
Our strong partner in neurosurgery:
