However, if one looks at science, there is still a lot to be done: There are no large data analyses that provide a uniform overall picture for the pathophysiology or therapy of HC. In particular, the question of the factors that influence HC patients positively or negatively in everyday life has hardly been investigated.
The research project behind HC&ME offers for the first time the opportunity to study hydrocephalus outside the clinical setting and to share the results with the public. With the anonymous data transfer of patients themselves, we may be able to answer certain questions in a completely new way:
Which symptoms are associated with which activities of daily life?
In the context of hydrocephalus therapy, which everyday factors influence the quality of life of a group of affected persons?
The data will be evaluated and analysed according to a properly defined study and the findings will finally be published. For a valid and meaningful result, many complete data sets are required: i.e. regularly maintained diary entries including some basic profile data over a sufficiently long period of at least 13,200 users. The success of the research project therefore strongly depends on the willingness to participate and the well-managed diary entries. Due to the very different data protection laws worldwide, only HC&ME users from Europe can currently participate in the research project. We are working on expanding this.
We would be pleased if you would like to support us and agree to the use of your - securely encrypted and anonymous - data. But we also understand very well if you want to use your HC&ME App for private purposes only - in this case of course no data from the HC&ME App will be transferred.
If you want to learn more about this research project behind HC&ME, please send us an email to hcandme @ miethke.com.

OUR PARTNERSHIP
WITH B. BRAUN
B. Braun and MIETHKE - Together for a better life with hydrocephalus
We have a long and intensive partnership with B. Braun in the field of neurosurgery. We are driven by a common vision: to improve the lives of hydrocephalus patients around the world with innovative solutions.
Our partnership is an exciting combination of B. Braun's nearly 180 years of expertise as one of the world's leading medical device and pharmaceutical companies and our agility as an innovative company and technology leader in gravitation-based shunt technology.
Our strong partner in neurosurgery: